19 April 2012
Yet another hospital visit, this time for my quarterly assessment with the MND team at Addenbrookes. This time I had the boss himself Chris (Dr Chris Allen) and our lovely MND coordinator, Jo (Joanna Sassons). Quite honestly I felt this was the most useful session we have had yet. They really did go into a […]
18 April 2012
I was horrified to hear on the BBC World Service, during the night, that one of the most important archaeological sites in the world, Babylon, has been completely destroyed. Today apparently there is no sign at all of the main brick lined street and the Hanging Gardens. I only caught snippets of this as I […]
17 April 2012
Last night was the first trial of an 8.30 bed time, as I’ve said before I’m usually ready for bed at that time but was not over anxious and spend any longer in bed than necessary due to the pain in my joints that worsen as the night goes on. I think the experiment was […]
16 April 2012
Another bright and sunny Tuesday, ideal for a trip to the golf club for the geriatric golf, except that the temperature, at best is going to reach 13°C with the threat of rain, which apart from anything else would drop the temperature by around 5°C. Clearly, it is not the day for me to visit […]
15 April 2012
I had a relatively pain-free night, having gone to bed at 9.40. Maybe this is something to do with the slow-release painkiller (tramadol). There does not seem to be very much rhyme or reason why one night should be so much worse than the next. I will discuss this with my MND team next week […]
14 April 2012
The day of the Grand National. England’s most famous race over hurdles. It’s the one day of the year when millions of people, who would not normally have bet on a horse, will consider having a flutter. (‘My lovely’ too, it transpired after the race!) Apparently, through the medium of television, the race is watched […]
13 April 2012
Yesterday, I mentioned the standing hoist and as I get weaker my face gets dangerously close to the crossbar. As a result we have modified this by strapping a small pillow to this bar. We also found the front of the foot stand rather sharp and hard on the soles of one’s feet when the […]
12 April 2012
I received an e-mail, yesterday afternoon from Doctor Margaret Saunders, who runs the Arthur Rank hospice. She was the person who made the original consultation with the pain doctor, Mark Abrahams from Addenbrookes, so she had a vested interest in trying to find a solution. She has discussed this with Joanna Sassons, my MND coordinator […]
11 April 2012
I had another miserable night after the initial sleep, waking around midnight, with painful joints. First one and then the other until around 4 a.m it was quite severe but, although I clicked the alarm twice during the night, I did so only 10 min or so before ‘my lovely’ was due down to turn […]
10 April 2012
I sacrificed my visit to the golf club today for a visit from somebody who rang me last week but from whom I had failed to make a note. In the event there was no visitor and no telephone call. Maybe I’m going a little dippy and imagined the whole thing! In any event, the […]