31 August 2012
I had an absolutely disastrous morning battling with Dragon. I think this is the worst it has ever been. What happens is that anytime during my dictation a word can split in half and the second part of that word will appear five or 10 lines above corrupting the original dictation as well as the part I am working at the time. As I say, a nightmare. However, I persevered to the end of this entry. I was just about to publish it when for some unknown reason it all disappeared. I went through all the usual ways of finding lost documents before having to admit, I was beaten. I called upon Paul the computer, my saviour in such matters and fortunately for me he was close by shopping at the local supermarket. Together we persevered and completed the days entry.
Recently,’ my lovely’ has taken to reading to me in the 5 to 10 minutes we have to spare after breakfast, before the carers come in to shower and dress me. Today we started on one of my son’s books about one of his ancestors (on his mother’s side) William Nanney-Wynn, the book is entitled A Perfect Patriarch. This book is about the Life and Times of William Nanney-Wynn, a prominent Georgian who lived in Merioneth in the 18th century. The foreword for the book was written by an eminent Welsh historian, Thomas Lloyd.
Feedback from my readers concerning the anxiety topic I have covered over the past week or so. In telling it as it is it seems that some readers feel I’m letting them down. The whole point of this blog is to trace my personal steps to the grave and to call, anything significant which occurs on the way. I thought the anxiety point was well worth while recording, as much for the benefit of readers as for myself. I shall be happy to receive any other comments from my readers to add to the debate
One of the things which may have added to my anxiety was the change over from the standing hoist to the sling type. With the former Alice and I could operate this on our own. This gave us more freedom to do what we wanted in terms of when we used it. On a pleasant summer’s day, for example, we could decide to put me in my wheelchair and spend an hour or so in the garden, where as using the sling hoist a requires two trained carers who are not always available when I need them alternatively, I could be put into my wheelchair either first thing in the morning or a lunchtime and stay in it until the next scheduled changeover. All of this therefore makes the whole process less flexible than it was before.
So, with all this aggravation I felt I needed something to amuse me. Click here and see if this does the trick for you as well as it did for me.
I don’t really understand why anyone would think you were letting them down by discussing the anxiety issue openly and honestly. I appreciate your candor and hope you continue to discuss your experiences openly. That’s one of the main reasons I enjoy reading your blog. I also have ALS and I think we are about at The same point in the disease progression. So I appreciate your observations.
I also think it is important that you write about everything honestly, anxiety,commode problems,etc,so that others going through the same know that they are not alone.
Totally agree with the two comments above. Do NOT change a thing..
I am really glad that my blog is reaching people like you. It makes the effort well worthwhile.
All the best