25 September 2011

Dear daughter Chloe gave me a hand to sort out the paper copies of the blog which I print off for the family. Sam one of my carers asked me today why I bothered print a hardcopy. Quite simply I want a copy for each of the children and ultimately for their children and children to come and one for’ my lovely’ .so that they have a permanent record of it. It is, in any event, part of my autobiography, in the chapter entitled Let Me Show You My Scars, which, describes, in what I hope is a humorous fashion, all the operations, accidents and illnesses, since I had my tonsils and adenoids remove, at Paddington Hospital, when I was 13 

I suppose my blog will only remain on the world wide web web as long as my blog master, Richard Morris, continues to pay the modest fee every two or three years. Certainly, at some stage it will disappear from people with laptops and when it does at least my family will have a copy of it.

When Craig, another of my carers, came at midday he remarked on the weather saying what a beautiful day it was, at the time the sun certainly shining, so we decided to have lunch outside. By the time I’d been hoisted into my wheelchair and establish myself in the garden a howling wind came up and the sun disappeared. However, stoically, again we staryed out over lunch and then called it a day and abandoned the garden.

Chloe left, after lunch, as she needed to get back to her own family but it was a lovely to see her. I am so proud of her, she has turned into such a lovely girl.

24 September 2011

My darling daughter Chloe came after lunch today to spend the night with us. Like Smiler, she comes at fairly regular intervals to check on me and to make sure that her mother’s a not doing things. We are truly blessed with our children. They are both caring and loving which is a great comfort […]

23 September 2011

The great excitement today was lunch with the Curtis’s, in their new home opposite the village green. The other’ old faithfuls’ -the William – Powllett’s and the Simpsons s were also invited. The four families which comprise’the old faithfuls’ all arrived in the village around the same time, the best part of half-century ago. The […]

22 September 2011

My quarterly assessment today within the MND team at Adenbrookes Hospital. I say ‘team’but, in actual fact it was only Jo (Sasson’s) and for a brief period the speech therapist who was only really sitting in to catch up rather learn to deal with any speech problems I might be having. I had J last […]

20 September 2011

One of the main domestic issues taking up a great deal of media space, at present, is the removal of the ,of 51, so-called ‘ travellers’, illegally occupying the Dale Farm site, in Basildon Essex. Some of these families are indeed regular gypsies but the bulk of them are people have just chosen that way […]

19 September 2011

We are all only too aware of the current state of our economy and the need for every one of us to play our part not only to save money but also not to waste it. Hospitals have been commissioned and have brand new wards left empty, for one reason or another that the hospital […]

18 September 2011

Two things I meant to mention yesterday for other MND sufferers and their carers. One, is that the fasciculations in both arms and legs ceased some considerable time ago. maybe even up to 12 months. When I stopped to think about this I wondered whether it meant that all the damage that was going to […]

17 September 2011

Enough about me, (yesterday’s entry) what is happening in the wider world.? Sadly most of it is bad news. Yesterday confirmation came that all four of the miners trapped in the goldmine in South Wales have died. This was one of the small private coal mines that is still running. As I understand it, it […]

16 September 2011

It is now precisely 4 years to the month since I became aware, when I was working out at the gym, that I had a problem of weakness in my left arm. At the time, I put it down to old age and did nothing about it until a health check-up at BUPA, scheduled for […]