I had my first consultation today with the Cambridge MND support unit. A nice Dr. Chris Allen, heads up the unit with a charming and helpful support nurse co-ordinator, Joanna.
Dr Allen noted the increasing weakness in my hands and arms but observed no sensory symptoms or problems with speech or swallowing. He did however observe a degree of muscle wastage. In the interests of research, he very kindly agreed to prescribe Riluzole in addition to that which I already receive from my GP, which meant I could take a double dose, although the evidence as to whether this is likely to be beneficial is sketchy.