21 September 2012

I received a call back today from my Papworth hospital consultant, Dr Michael Davies. He seemed surprised that I had not attended my last appointment. There seems to have been some miscommunication over the need for such an appointment whereby if the hospita decided that the whole business of attending personally required a great effort on my part, though were quite prepared to do what they could over the telephone.

Michael Davies was as surprised as I was over this turn of events. As I explained to him, so far as I was concerned this was very time when I needed Papworth as is evidenced by this present     telephone. C had noticed that over the past two or three days my that breathing had become very laboured. Although I could not say with any degree of certainty that this coincided with the increase in my lorazapam     (my’ anxiety’    pill) I and thought it reasonable to discuss this with my consultant and thus the telephone, call.

, Michael’s attitude was what I expected. If I found the whole business of physically attending a clinic at Papworth, he was quite prepared to do what he could through a telephone consultation. After speaking Dr Michael Davies, we both agreed that I could certainly make the visit to Papworth hospital and Alice wondered whether they could fit morning on they third, fourth or fifth of October, when our own Dr Michael, from Australia, will be with us and good accompanying me to Papworth. Dr Davies promised to look at it and let us have a response on Monday.

I am quite pleased with the attitude of Papworth hospital who had somehow got hold the wrong end of the stick and left with the impression that I could, or would, no longer wish to make the journey to Papworth, for a face-to-face consultation. Michael Davies agreed with me that this was an important time for me to attend regular consultations with the hospital. The fact that there had been an alteration in my breathing, which I now believe was laboured, required some investigation at Papworth to eliminate such things as a chest infection, the possibility of which had been identified at last consultation, about four months ago.            

20 September 2012

When the electrical fault manifested itself, a couple of days ago, the culprit turned out to be a small strip light over a built in dressing table. This, in turn affected the circuit from which the bathroom heater ran. I was pleased to learn last evening that this had been corrected and I could resume […]

19 September 2012

Thank goodness I woke up feeling fairly normal and it was just as well I did. Around 4.00 am I was woken by voices. When I called out ‘my lovely’ came and told me that we had a serious electrical fault. We are very fortunate in having an arrangement with Chris ‘ the electrician’ who […]

18 September2012

The sedated feeling remained with me until I went to bed and as I could not make much sense I decided to keep today’s entry to a minimum. One thing struck me as I was struggling to dictate something, and that was the loss of power in my voice. I have never considered this might […]

17 September 2012

I cannot pretend that I did a great deal today. I’m still suffering from this overwhelming desire to close my eyes and to sleep. I am convinced that this is a result of adjustments to my medication that have brought me into the land of the sedated. In one of my former lives I was […]

16 September 2012

Having spoken of the possibility of respiratory failure only in yesterday’s entry, I had a very uncomfortable period this morning during the passage from bed to chair and so on through to finally being dressed before transfer to my study chair. This was a typical situation of me being very uncomfortable, my inability to sit […]

15 September 2012

My lovely’ and I were engaged in our early morning chat waiting for our carers to come in shower and dress me and from the way the conversation went in became clear to me that my family had been alerted to the possibility that I could be carried off at any time through respiratory failure. […]

14 September 2012

There has been a lot of who-hah in the national and international press, over the last week or two concerning the conduct of our young of royalty, specifically Prince Harry, the younger brother of our future King and the relatively newly Duchess of Cambridge, who, as things stand at present, will become our future Queen. […]

13 September 2012

Yarn, one of the three carers from Two Counties, who looks after me throughout the night, reported to Alice this morning that I had had the best night’s sleep, possibly for years. I had slept for six hours showing very little need to be turned. So concerned was Yarn that there was possibly something amiss […]

12 September 2012

Getting down to the hard reality of life, I am thrilled to find that my voice is sufficiently strong in the morning to deal with my blog and it is only in the late afternoon, or early evening, that it has faded below the recognisable volume required to make this whole voice recognition process work […]