1 June 2009
I had a session today with the boys at Addenbrookes discussing the final modifications for the feeding frame. I am really excited to see the finished result although I have already worked out a more simplified, cheaper version 2, once I am satisfied that this one works. The first thing will be to get it […]
27 April 2009
Smiler’s birthday – 45 years old – he has been taken to Venice for a few days by Kimberly. Went to Addenbrookes Hospital today to see the latest prototype of my feeding frame. They have very nearly got it right. After agreeing one at two minor adjustments I hope to pick it up later this […]
26 March 2009
I had my quarterly assessment with Dr. Allen and his charming support nurse, Joanna Sassons at Addenbrookes today. I asked the doctor to take an educated guess as to when I’m likely to lose the use of my hands completely. He thought perhaps six months for the left-hand, and shortly after that the right-hand.. I […]
May 2008/January 2009
I went on pretty much as normal over these intervening months but with progressive weakening of my hands and muscle wastage of the arms. Both hands were very weak with the right-hand fractionally stronger than the left. I could no longer manage buttons or zips or any action that required the use of my forefinger […]