18 September 2009
I decided to update my patientslikeme.com profile today, having not done so for a month or so. I was interested to note that the ALS Functional Rating Score (FRS), which keeps track of one’s overall condition by measuring symptoms in all parts of the body, grades ‘normal’ in the range between 75 – 25. In […]
17 September 2009
Back to London today for the City Branch lunch of the Arbitration Club, at Clifford Chance’s office in Canary Wharf -a bit of a drag. I overcame the eating problem by asking for 2 large up-turned basins, each covered with a napkin, on which I rested my right arm and my wine glass. A temporary […]
16 September 2009
This evening, my lovely and I went to the Fenwick Elliott Garden Party on the roof of Derry & Toms. in the High Street Kensington. It really is a very beautiful garden which brought to mind the Hanging Gardens of Babylon which I imagine could have been similar. I was fortunate enough to visit Babylon […]
14 September 2009
A sort of personal medical day. It started with the auxiliary nurse coming to file my fingernails. She was followed by a medical engineer adjusting the geared arm support attached to my eating table (kindly supplied through my Addenbrooke’s Hospital MND NHS Unit) Finally, an optician, from Glasses Direct came to check that the replacement […]
12 September 2009
The last day for me of the cricket season at Lord’s today – the fourth, of what had turned out to be a disastrous - 7 one-day series against Australia. Sadly, the result for England was no better than the earlier three games… However, it was the most beautiful summer’s day and I had a […]
11 September 2009
Lunch at home today with a fellow MND sufferer and his carer. It was a very useful session in swapping ideas how to cope with our very similar disability — weak hands and arms. One thing he had which I did not was a ‘kindle’ (e-reader). Of course, I have the Sony version which I […]
10 September 2009
My quarterly assessments with me MND team at Addenbrookes today. A little earlier than usual in order to clear me medically to go to China. However, I made it clear that whatever they said I would still be going. In the event, I got the all clear to fly – no likely breathing problems. The […]
9 September 2009
Arbitration Club lunches, yesterday it was the Mother Club and today the Oil and Gas branch, both mercifully within walking distance of Liverpool Street Station. I was also able to pick up my visa from the Chinese Embassy before the Tuesday lunch. The third of the one day matches against Australia today, which again, resulted […]
7 September 2009
I made my long-awaited visit to Papworth Hospital today. I was there for nearly 4 hours undergoing a variety of respiratory and expiratory tests as well as having a chest x-ray and a lung blood test. Basically they were testing my FVC (Forced Vital Capacity) and checking my diaphragm for any deterioration in my breathing. […]
6 September 2009
The second of the 7 one-day series against Australia at Lord’s today. I’m so disgusted with England’s performance that I will only say that we lost by a street and did not distinguish ourselves in any area of the game However, cricket aside, I had a lovely day and met many friends both in the […]
D. Mark Cato
D. Mark Cato