12 October 2009
Gavin from Able2 – such a kind helpful young man – called in today to adjust the articulated arm support which I use when I’m eating. It elevates my hand to my mouth which makes the whole process of eating less stressful. This arm support is, of course, an alternative to my own feeding frame. […]
9 October 2009
A good day. Lunch with one of my oldest friends, 92 year old Geoffrey Hanscomb, at my favourite fish restaurant in London, Skeekey’s. When I say oldest I mean the one I have known longest. GAH gave me my first holiday job, 60 years ago and we have been good friends ever since. I started […]
3 October 2009
For those readers who are interested in the progress of my gadgets — an update. You may recall that I attempted to enlist the help of three knights of the realm who, by virtue of the previous posts they held, were very well connected with the City of London. I say were, because they are […]
11 September 2009
Lunch at home today with a fellow MND sufferer and his carer. It was a very useful session in swapping ideas how to cope with our very similar disability — weak hands and arms. One thing he had which I did not was a ‘kindle’ (e-reader). Of course, I have the Sony version which I […]
4 September 2009
Today a courier arrived with an oximeter for me to use in preparation for my visit to Papworth Hospital next Monday. I believe that they are testing for any possible weakening in my diaphragm which will ultimately affect my breathing. All I have to do is to wear a clip, overnight, on my forefinger, attached […]
3 September 2009
Yesterday I went to the Saffron Walden Community Hospital for my six-weekly toenail session with a very cheerful podiarist, Sarah. In view of my driving difficulties I asked if they did home visits but apparently you can only get that if you are bedridden. Today, a very helpful occupational therapist from the Environmental Control Equipment […]
7 August 2009
A nice young auxiliary nurse, Kelly, came and cut my fingernails. What is even more encouraging is she has agreed to pop in every 3/4 weeks to repeat the process. However, she accepts that this is not an ‘as of right’ service provided by the NHS, so I have now written to my MP on […]
31 May 2009
The last two days have been absolutely glorious English weather – azure blue cloudless skies, a temperature in the mid-20s and a cooling breeze. I have taken advantage of it to indulge in one of my favourite pastimes au naturel au jardin, behind a suitable screen, of course, however I wonder what my friends think […]
1 May 2009
A red letter day in more than one sense. Most important of all I picked up the third prototype of my feeding frame. My larger elastic waistband trousers arrived and so did my kilt. I collected the feeding frame late afternoon and therefore I’ve had no time to examine in it detail. The larger elasticated […]
23 April 2009
After an overnight stop with my mother followed by a day in London – meetings and lunch – this is a good moment to take stock. The first thing I have to say is that the miracle concerning my artificial urinary sphincter (AUS) continues. In other words, I can urinate naturally without squeezing me control […]