6 April 2009
The Bio-Bidet unit arrived today. I must now contact my plumber and my electrician to have it fitted on top of my existing WC pan.
3 April 2009
I went up to London today, to have lunch with my nephew, James Grand. Unfortunately the trip started badly. The train came in to the station at Audley End, I was the last to leave the waiting room and was unable to open the door quickly enough – it was just too heavy. By the […]
1 April 2009
A very nice man came today and demonstrated the ‘washing and drying’ the lavatory (The BioBidet). Alice and I were both very impressed. Apart from the basic functions that are all sorts of sophisticated adjustments one can make to it included a heated seat – if that appeals! It operates by hand held remote-control unit […]
28 March 2009
Three useful gadgets arrived today on permanent learn from AbilityNet. A carrot shaped vertical lever mouse with a left kick button on the top. Pretty easy to use and certainly easier than my built-in laptop mouse. There also appears to be a foot controlled version with which I’ve yet to get to grips. They also […]
26 March 2009
I had my quarterly assessment with Dr. Allen and his charming support nurse, Joanna Sassons at Addenbrookes today. I asked the doctor to take an educated guess as to when I’m likely to lose the use of my hands completely. He thought perhaps six months for the left-hand, and shortly after that the right-hand.. I […]
25 March 2009
I had a ‘remote assist’ call today with Abilitynet, the computer assistance arm of the MND Association. The senior assessor, who made the call, was extremely helpful and will be sending me some aids to improve my use of voice activation. She is now ‘on the case’ and as my hands grow weaker will provide […]
8 March 2009
Grave disappointment. I received the following e-mail today from the Washington professor abandoning my bionic glove project. “Hi Mark I heard you spoke with Jenny. Thank you for explaining to us about what we are thinking about. After evaluation with the team, we have come to a conclusion that your case is not possible for […]
6 March 2009
Returned home today having had a great time. I managed, just, with Michael’s help and some understanding stewards on the aircraft. Apart from resigning from the golf club I have also resigned from my last arbitration. It was a very heavy case and likely to go on for some months. Being unable to write legibly, […]
9 February 2009
Off to Australia, to stay with the same friends as last year and then onto Thailand, with Dr Long for a week, on the way home. Apart from requiring some assistance with dressing, provided my hands do not significantly weakened further during these intervening weeks, I should manage. After that I can only take it […]
5 February 2009
I heard a few days ago that the Washington professor has formed a non profit making company, XXWorks, to develop ideas such as my bionic gloves which are to be one of the first projects. A team leader will be in touch. I heard from a young lady today, who appears to be the project […]
